Useful Organisations

Whether you are a trauma injury survivor, the family and carer of a survivor, you’ve witnessed a traumatic event or have lost a loved one through trauma, there are services out there that can help you get your life back on track.  You can click on the headings below to get to the relevant sections on this page.

Injury specific websites

ADVOCACY

AWARENESS AND PREVENTION

CARER AND FAMILY SUPPORT

MENTAL AND EMOTIONAL SUPPORT

SHARING PERSONAL STORIES

PEER SUPPORT GROUPS

FINANCIAL AND LEGAL HELP

REHABILITATION AND CARE SERVICES

INTERNATIONAL

 

 

Injury Specific Websites

Living with a brain injury

Headway offers information and support for people affected by a brain injury, as well as resources for professionals working in the brain injury field. Phone 0808 800 2244, email: helpline@headway.org.uk

The Disabilities Trust is a leading UK charity providing support for people with complex needs. This group includes the British Brain Injury Rehabilitation Trust (BIRT). BIRT provides residential and day services to meet the needs of individuals with Autism, Brain Injury, Physical Disability and Learning Disability. They also provide care and support to enable living in the community and support at home.

People with brain injuries sometimes need to support of clinical neuropsychologists. The British Psychological Society has a register of psychologists in this speciality.  Also, the Brain and Spine Foundation has a free helpline run by neuro nurses: call 0808 808 1000.

The Bridges website provides information and links to services that help people with Long Term Neurological Conditions (LTNC) to develop self-management skills. The Bridges self-management program was originally developed in 2005 in response to a need for improved long term support for stroke survivors, but their Self-Management guide is also useful for people with neurological injuries sustained through trauma.

Living with a spinal cord injury

The Spinal Injuries Association (SIA) is a national user-led charity for spinal cord injured (SCI) people. They provide support services for people with spinal cord injury from hospital visits to support in the community, plus a peer support programs and a range of other practical advice and assistance.

Through its projects and programmes, Aspire offers practical support to the 40,000 people living with a spinal cord injury in the UK so that they can lead fulfilled and independent lives in their homes, with their families, in work places and in leisure time. Aspire is particularly active with fundraising and engaging users in activities.

Orthopaedic trauma and limb loss

The Limbless Association provides information and support to UK amputees and the limb loss community.

The NHS provides information for amputees on the recovery process following a limb removal, including stump care and fitting prosthetics.

Limbcare is a Charity offering advice and support for the limb impaired.

Recovery from Intensive Care

The Intensive Care Unit Support Teams for Ex-Patients (ICUsteps) charity was founded in 2005 by ex-patients, their relatives and ICU staff to support patients and their families through the long road to recovery from critical illness. There are support groups around the UK and an on-line community.

The Intensive Care Society provides information to patients and relatives that is relevant to each step of a patient's treatment and recovery from critical illness.

Advocacy

Transport related injuries


BRAKE is a road-safety charity dedicated to stopping deaths and injuries on roads and caring for people whose relative or friend has been killed or injured on the road.

Road Peace is the national charity dedicated to helping road crash victims. They provide practical and emotional support (primarily to relatives and friends who have lost a loved one through a road accident), as well as advocacy services aimed at providing justice for victims and reducing the road toll.

Interpersonal violence

Victim Support provides practical and emotional support and advice to people who have been affected by crime. This includes victims of interpersonal violence and other people affected by the violence, including friends and family.

Living with a disability

Disability Rights UK provides a wide range of information, products and services by and for disabled people.

Awareness and prevention

Drop the Weapons is a website set up by the Metropolitan Police to deter people from engaging in gun and knife violence by providing information and links to support services.

In 2008, 16 year old Ben Kinsella was killed by a knife attack in Islington, the 17th child so killed that year. The Ben Kinsella Trust was set up to reduce the incidence of knife violence through awareness raising and education.

The London Cycling Campaign is a group that lobbies for safer conditions for London’s cyclists.

The Campaign Against Living Miserably aims to raise awareness about male suicide, supports preventative projects and provides a helpline and on-line community.

The Royal Society for the Prevention of Accidents is dedicated to educating the public and policy makers about ways to prevent injuries in the community, home and work.

Carer and family support

Carers UK provides support and campaigns on behalf of the UK’s 6.5 million (unpaid) carers, and includes a forum for carers to connect and talk.

The Princess Royal Trust for Carers is the largest provider of support services for carers in the UK. The organisation provides advocacy and information about support services available for carers, and their website includes a discussion board.

The NHS Choices website provides information on the kinds of social support services available for people with a care need (such as a temporary or permanent disability) and for their carers. The range of services covered include: equipment, help in your home or a care home, community activities, day centres, home adaptations, residential care, financial support, information and advisory services, and support for carers.

Mental and Emotional support

Coping with distress

ASSIST Trauma Care employ experienced therapists trained to work with Post Traumatic Stress Disorder (PTSD) and the after-effects of trauma in line with current evidence-based practices.  These services charge fees.

Mind is a mental health charity, dedicated to providing information and support to people with mental health problems, as well as their friends and family. Information includes symptoms and treatment for different disorders, including Post Traumatic Stress Disorder. Mind has branches around the country and a list can be found on their website.

Relate provides information and support to help people with their relationships including face-to-face counselling, online and telephone counselling for people at any age and any stage of couple, family and social relationships.

Counselling Directory provides a searchable database to find a counsellor or psychotherapist in your local area, as well as listing events and other resources.

The British Association for Counselling and Psychotherapy provides details of counselors and psychotherapists in your area.

Samaritans provides confidential, unbiased emotional support, 24 hours a day, for people who feel distressed, desperate or suicidal. Helpline: 08457 90 90 90

Combining breathing, meditation and paying attention to the present moment, ‘mindfulness’ is a technique for helping people change the way they think, feel and act to reduce stress, anxiety and depression. The Be Mindful site provides access to on-line training courses which teach mindfulness.

Grief

There are many resources available which aim to help people cope with the devastating loss of a loved one.

Mind provides information about some of the feelings that can come up for you, as well as a list of organisations that can provide grief counselling, networking and support.

Cruse Bereavement Care provides counselling, support, information, advice, education and training services to the friends and relatives of someone who has died, to help them understand their grief and cope with their loss.

Care for the Family provides support and a befriending service for bereaved parents and Compassionate Friends is an organisation of bereaved parents.

Self Harm

The Suicide Bereavement Support Partnership provides advice, and a list of support groups and other resources to help people whose lives have been affected by suicide or attempted suicide.

Campaign Against Living Miserably aims to raise awareness about the prevalence of suicide attempts particularly amongst young men, and supports a range of preventative projects.


Sharing personal stories

The After Trauma Forum on this site is the only on-line community in the UK dedicated to the needs and experiences of people impacted by traumatic injuries. However, there are other websites and on-line communities where people share their stories of illness and recovery which can include trauma.

Healthtalk covers a wide range of personal experiences of health problems and illness. It includes videos of people who have been through different illnesses and includes sections on survivor’s experience of life changing injury – including brain injury, spinal injury, limb loss, sensory loss and burns. The videos cover topics ranging from the cause of the injury, hospital stay and medical treatment, rehabilitation and adjusting to a new life. There are also video interviews with people who have been bereaved through traumatic injury, including victims of crime.

Caring Bridge is an international site where people experiencing a variety of illnesses and injuries (or their loved ones) can reach out to other people for emotional support and encouragement.

A large number of community based groups around the world use HealthUnlocked to set up support groups for a range of specific health conditions.

Millions of people around the world use The Experience Project to anonymously post and share personal experiences of all kinds (not just health related).

Many people feel the need to keep the memory of their lost loved one alive, and to tell others about their lives. Gone Too Soon is a website where people can post memorials for loved ones and friends they feel they have ‘gone too soon’.

Peer Support Groups

Day One is a dedicated traumatic injury charity based in Leeds and supporting Leeds General Infirmary Major Trauma Centre..  Their services include organising a peer support group and hospital visitation programme. 

Financial and legal help


If you are struggling financially after an accident, the Citizens Advice Bureau can offer advice and support on a number of money issues, including information on benefits available to sick and disabled people and their carers. You can find your local office by visiting their website.

The Department of Work and Pensions also lists the types of benefits and allowances available to people with disabilities and their carers.

The Gov UK website also provides a comprehensive information about benefits, disability rights and support for carers.

Some people may be able to claim compensation if they have had an injury. The Law Society can advise you on lawyers in your local area who specialise in this field.

The Association of Personal Injury Lawyers provides general legal information relating to personal injury, and provides a list of professionally accredited lawyers who specialise in injury and can help with compensation claims.

The Solicitors Regulation Authority provides advice to consumers on how to check that your solicitor is bona-fide and what to do if you have any concerns.

The Headway website has a list of over 180 firms across the UK who specialise in brain injury cases. 

There are many legal firms that specialise in personal injury cases. It is important to find out their experience and charges, including percentage of compensation taken in 'no fee, no win' cases. Established companies such as Slater and Gordon, Field Fisher, Leigh Day have useful information about the compensation claims process.

National Accident Helpline offer free, confidential advice for those who’ve suffered an injury. Their legally trained advisers and network of solicitors can help you to make a compensation claim.

If you have been off work following your accident, you will need to get a sick note from your GP. If you feel you will need to make some adjustments to get back to work, you can apply for an Access to Work grant. An Access to Work grant can pay for practical support  if you have a disability, health or mental health condition to help you start working, stay in work or move into self-employment.

Action on Disability and Work UK provide personal support to individuals with disabilities or long term health conditions including help with job hunting, removing barriers in the workplace, talking to employers.

If you have a disability, local councils can provide you with parking stickers and mobility aids.

If you need a stairlift to get up and down stairs, you may be eligible for a grant. Stairlifts Reviews can help you find grants and provides information about the models of stairlift available.

Rehabilitation and care services

Please talk to your GP if you feel you require any additional rehabilitation at home or help form social services in your local area'.  Private rehabilitation can be provided through several private organisations but many are specific for patients with brain injuries such as QEF.

Depending on the circumstances of your injury, an injuries lawyer may be able to help you access compensation to pay for private rehabilitation services and support.  

PACE Rehabilitation provide a coordinated multi-disciplinary service to individuals who have sustained limb loss and/or serious limb injury.

If you find it difficult to move around your home, or deal with the usual activities of daily living, this site offers suggestions of where to go to get help with modifications.

International

The USA based Trauma Survivors Network provides resources for trauma patients, families and practitioners. Some of the information on this website has been drawn from this network with their kind permission.

The Society of Cognitive Rehabilitation is an on-line American resource for people with Acquired Brain Injury/ Traumatic Brain Injury.

After The Injury is an American on-line resource to support parents help their children recover from injury and trauma.