After Trauma Recovery App

Background

AfterTrauma was the first UK website launched with the intention of supporting survivors of traumatic injury, and their carers and supporters, to help them understand what has happened to them and the resources available to help them recover.

When it was launched in 2015, we always knew that it was just the first step towards developing more digital resources to help trauma survivors restore optimal health and functioning.

Thanks to a grant from Barts Charity, C4TS are now working to transform AfterTrauma into a web-based app, with added interactive e-health features, that will better support and motivate trauma survivors after they leave hospital.

Our Recovery App will be based on the principles of supported self-management. Supported self-management programs aim to educate people about their health condition and care, motivate them to care for themselves in the best possible way (eg coaching, goal setting), and provide them with techniques and tools to enable them to do that (eg connecting with peers).
 

There are lots of different models of SMPs, most of them for long term conditions such as chronic pain and diabetes.  You can read about many of them here. So far, there is only one on-line SMP set up specifically for survivors of multiple traumatic injuries, and that is Next Steps in America.

AfterTrauma recovery app

As one step to improve this situation, we are developing an AfterTrauma recovery app for trauma survivors, a simple to use interactive digital tool that enables them to:

  • See clearly what has happened to them (the nature of their injuries, and treatment received)
  • Understand what symptoms and side-effects they will need to manage
  • Understand their rehabilitation plans and what they need to do to get back to maximum functioning
  • With clinicians, set goals that will help them achieve that rehabilitation, track and keep a record of progress against goals over time
  • Share information about injuries and impact with clinicians, families and others as they choose
  • Connect with patients who have had similar injuries/ experiences so that they can share learnings and model behaviour
  • Easily access resources that will help them stay motivated

In addition to these 'virtual' resources, there is also a need for a UK wide network of 'on the ground' regional peer to peer visiting and support groups. Day One in Leeds is a pioneer in this regard, and we hope our new app will support other patient groups to follow suit.

AfterTrauma recovery app patient focus group

We have an incredible group of 13 former trauma survivors from across the UK who are helping us develop this new e-health platform.  

We are also very fortunate to have enthusiastic trauma clinicians from several trauma centres also helping. We hope clinicians in Major Trauma Centres will eventually help patients sign onto the app before they are discharged to make the transition home easier, and give reassurance that patients can still stay in contact with the people who looked after them. 

If you are a trauma survivor, trauma clinician, or interested member of the public who would like to join the focus group for this project, then we would love to hear from you. Please contact Nicole