Do you want to be involved in trauma research?

General discussion about new trauma related topics that have yet to be put into categories.

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Do you want to be involved in trauma research?

by forum_admin » Thu Jan 21, 2016 10:15 am

Hi everyone

wE hope you all had a good Christmas and New Years and are feeling optimistic for what 2016 can bring for you and your loved ones.

AfterTrauma are now looking for former trauma patients who would like to provide input into either one or all of the three national trauma projects which are outlined below:

1. NICE: The National Institute for Health and Care Excellence (NICE) issues guidelines to UK clinicians about best practice in caring for patients. NICE are currently developing guidelines for clinicians treating patients with traumatic injuries. The have asked AfterTrauma what kind of information trauma patients and their families would appreciate getting whilst in hospital prior to discharge and once home. We will be grateful if you could send us ideas of what information you think may have been of benefit or still could be of benefit.

2. AfterTrauma are setting up a national patient forum to provide a clear way for former trauma patients to influence high level decisions about trauma research and trauma care services across the UK. We anticipate this will initially involve about four interactions a year, consisting of email responses to questions about research proposals or policy documents that we send out. We are looking for patients and/or carers who would like to be involved in the national forum.

3. Rehab Audit: Did you try to access specialist rehabilitation services after your injury? NHS England and the Welsh government have funded a national clinical audit of specialist rehabilitation for patients with complex needs following major injury. The study is trying to improve the data collected by clinicians about who gets referred to specialist rehabilitation and patient outcomes. We are looking for patients to comment on the draft audit report when it is produced.

If you are interested in any of the above, you can email either Karen or Nicole on the emails below. Simply state NICE, AfterTrauma and/or Rehab Audit to indicate how you may want to contribute. We'd love to hear from you in the next few days if possible. You can find more information about how patient involvement in health research works here: http://www.aftertrauma.org/get-involved/public-involvement-in-research

Finally, we have just set up an AfterTrauma Facebook group (https://www.facebook.com/groups/AfterTrauma/), as another easy avenue for people to meet and socialise – feel free to join, and spread the word!

Thank you so much!

Karen and Nicole

Karen Hoffman: k.hoffman@qmul.ac.uk
Research Fellow, Centre for Trauma Sciences
Nicole Skeltys: n.skeltys@qmul.ac.uk
Communications Officer, Centre for Trauma Sciences
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Re: Do you want to be involved in trauma research?

by Shanmartin » Thu May 05, 2016 5:16 am

Dear Karen/Nicole

If you are still needing input to research I would be happy to contribute. I did so to the NICE guidelines, published in February for Prof Chris Moran. Particularly interested in how I can support rehab improvements. Nigel Rossiter mentioned someone may be in contact but not heard anything hence my direct approach. Kind regards. Shan 07766896759.
 
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Re: Do you want to be involved in trauma research?

by forum_admin » Thu May 05, 2016 5:23 am

Great to hear from you Shan! Yes, we definitely are still looking for people to help us with our research and advocacy. I will email you after this, best Nicole
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Re: Do you want to be involved in trauma research?

by DuncanBuckley » Mon Oct 17, 2016 2:02 pm

Hi Karen and Nicole!

Most certainly put my name down for any you think; I'm always happy to help in any way I can.

Duncan
 
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Re: Do you want to be involved in trauma research?

by forum_admin » Mon Oct 17, 2016 2:45 pm

Hi Duncan, great shall do! Great to meet you at the ICF conference and really appreciated your invaluable input! Nicole
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